This page gives you links to useful information for families...
Allies of the National Valuing Families Forum
- The Challenging Behaviour Foundation
The Challenging Behaviour Foundation are the charity for people with severe learning disabilities whose behaviour challenges. They make a difference to the lives of children and adults across the UK through:
- information about challenging behaviour
- peer support for family carers and professionals
- supporting families by phone or email
- running workshops to reduce challenging behaviour
- speaking up for families nationally
Dimensions are one of the country’s largest not-for-profits supporting people with learning disabilities, autism, challenging behaviour and complex needs, and are driven by their values. People with learning disabilities and their families are at the heart of everything they do and they want every person they support to have a great life, with excellent outcomes.
- Hft's Family Carer Support Service
Hft's Family Carer Support Service (FCSS) is a free national service for family carers who have a relative with a learning disability.
They support family carers in a variety of ways:
- Providing one-to-one support by telephone, letter or email
- Providing family carer workshops about issues affecting family carers
- Developing family carer resources
- Updating family carers about issues and legislation that affect them
Hft produce a number of resources ranging from their holiday information guide to information about safeguarding and the change from DLA to PIP - you can find it by clicking here
Mencap want to improve the lives of people with a learning disability and their families now, and fight alongside them for a better future. They team up with their network of over 400 local groups to reach people across England, Northern Ireland and Wales.
- Partners in Policymaking
Partners in Policymaking is an umbrella name for a suite of leadership training courses for disabled adults, parents and carers of disabled children, professionals and other service providers working in education, health and leisure. It has grown over the past 10 years into further leadership courses and the development of a national network of people - champions who believe that all people should have the right to live the life they choose.
Information about key areas:
The Care Act
There is lots of information out there about The Care Act. Hft have kindly produced a film of the '5 key things family carers need to know about The Care Act' you can find it by clicking on the 'Our films' tab.
The Government have produced a series of fact sheets that you can find here.
Carers with learning disabilities
Carers with learning disabilities look after a partner, family member or friend. Many carers with learning disabilities care for people who also care for them. This is called mutual caring.
Some of the caring jobs that carers with learning disabilities do are:
- cooking and cleaning
- helping with personal care and medication
- lifting and carrying
- or help with benefits and forms
Sometimes it is difficult to see when a person with a learning disability starts to help more. This means they might not get all the help they need.
You can find out more about carers with learning disabilities in the documents below.
You can also find the response of the Carers with Learning Disabilities Network to Fulfilling Potential.
You can find more information about mutual caring here.
ADASS produced a discussion paper in 2011 about mutual caring 'Caring Conversations - Caring, Coping and Mutual Caring'
The website Public Health England have used to share information about their work on reducing the health inequalities experienced by people with a learning disability, www.improvinghealthandlives.org or www.ihal.org has now been archived and will no longer be updated. It will continue to be available on the national archive, here.
New information being published by the learning disability team at Public Health England (PHE) will increasingly be published on www.gov.uk.
All learning disability related information published by government departments can be found on www.gov.uk by searching ‘learning disability’. This can be narrowed down to the work PHE have published by selecting Public Health England from the drop down list of organisations.
Housing and Support Alliance have a number of resources that are helpful for families
Information about shared ownership - My Safe Home
Families sometimes do not know how to go about helping their family member with learning disabilities into paid work. The 'Getting a job' guide offers valuable information to help families think about what they can do to support their family member.
Planning for the future
Thinking Ahead is a guide to support families planning for the future. It was devised and written by Christine Towers when she was at the Foundation for People with Learning Disabilities.