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The National
Valuing Families
Forum

Members of the forum

The National Valuing Families Forum is lead by a co-chair, who is supported by a small planning group.

The forum is made up of representatives from each of the 9 regions in England.

A family carer representative who sits on the Adult Autism Programme Board is also part of this forum, alongside a representative of carers with a learning disability.

All of the regional representatives are family carers of people with a learning disability.

The forum also has a number of 'allies' (individuals or organisations working with family carers who share our value base) who and are also members of the forum.

Find out more about us...

Vicki Raphael

Vicki Raphael

Co-chair of the National Valuing Families Forum

The co-chair leads the forum and is responsible for sharing the messages from the regions with the Government at the Learning Disability Board.

Vicki Raphael is the co-chair of the National Valuing Families Forum.

Vicki is based in the Eastern region and is a co-founder of Inclusion East.

She is a mum and has two children. Christian, her son, has complex needs.

Vicki also represents the National Valuing Families Forum at the Transforming Care Assurance Board.

She is passionate about including everyone with families and people who have learning disabilities standing strongly together.

She wants the forum to continue to be an informed, progressive challenger and the heart of a strong network of information and support.

E:
vicki.inclusioneast51@gmail.com
T:
c/o 0113 2444 792
Susan Kirkman

Susan Kirkman

Representative from the Adult Autism Programme Board

Sue is the family carer representative on the Adult Autism Programme Board and is also a member of the National Valuing Families Forum.

Sue has two children. Her son TL has autism.

Sue is passionate about ensuring that those with autism truly have a fulfilling and rewarding life; in other words have equal access to housing, health care, education, work and a good life in the community as their neurotypical friends and relatives.

She wants the forum to continue to collect the views of carers and siblings of those with a disability and to ferociously represent these views wherever appropriate.

Pat Charlesworth

Pat Charlesworth

Representative for Carers with Learning Disabilities

Pat represents carers with a learning disability at the National Valuing Families Forum.

She spent many years caring for her partner Roy, and has been a key campaigner in making sure people are aware that people with a learning disability can be a carer and take on a caring role too.

Pat is part of the Carers with Learning Disabilities Network.

She is passionate about getting the voice of carers with a learning disability heard.

Trevor Moon

Trevor Moon

North East Regional Representative

Trevor shares the role of North East Regional Representative with Stan Cooke.

Stan Cooke

Stan Cooke

North East Regional Representative

Stan shares the North East Regional Representative role with Trevor Moon.

Stan is based in Northumberland.

Julia Erskine

Julia Erskine

North West Regional Representative

Julia Erskine is the North West regional representative.

Julia is based in Liverpool and runs Merseyside Partners in Policymaking.

Julia supports Vicki at the Learning Disability Board and is part of the forum planning group.

E:
juliaerskine@yahoo.co.uk
Angela Ellis

Angela Ellis

Yorkshire and Humber Regional Co-ordinator

Angela co-ordinates the Yorkshire and Humber regional families forum.

The current rep has just stepped down from the role so the region are in the process of electing a new rep.

E:
angela@inclusionnorth.org
Shirley Corbett

Shirley Corbett

West Midlands Regional Representative

Shirley is the regional representative for the West Midlands.

She lives and works in the West Midlands.

E:
shirley.corbett@birmingham.gov.uk
Steph Chapman

Steph Chapman

East Midlands Regional Representative

Steph is the regional representative for the East Midlands.

Steph lives in the East Midlands.

Her brother, Gary has a learning disability.

E:
stephchapman2016@virginmedia.com
Wendy Burt

Wendy Burt

Eastern Region Regional Representative

Wendy is the regional representative for the Eastern region.

Wendy lives in Essex.

E:
wendyburt007@btinternet.com
Jan Sunman

Jan Sunman

South East Regional Co-ordinator

Jan is the regional co-ordinator for the South East.

She works closely with the co-ordinator of the London region families forum Debbie Robinson.

E:
jan.sunman@oxfsn.org.uk
Debbie Robinson

Debbie Robinson

London Regional Co-ordinator

Debbie is the regional co-ordinator for the London families forum.

London and the South East forums work closely together.

The London regional representative has recently stepped down and the region are in the process of electing a new rep.

E:
debbie.robinson@kaleido-scope.org.uk
Dame Philippa Russell

Dame Philippa Russell

Ally - Vice President of Carers UK

Dame Philippa Russell has been caring for her disabled son, Simon, for over half a century. Formerly Chair of the Prime Minister's Standing Commission on Carers,
she is now a Vice President of Carers UK.

Cally Ward

Cally Ward

Ally - Challenging Behaviour Foundation

Cally currently comes to the National Valuing Families Forum representing the Challenging Behaviour Foundation.

She led the forum for many years as the Families lead in the Valuing People team.

Cally is part of the National Valuing Families Forum planning group.

Liz Wilson

Liz Wilson

Ally - Dimensions Family Consultant

Liz comes to the National Valuing Families Forum with lots of hats on.

She represents Dimensions where she works as a Family Consultant, but she is also a mum of two. Her daughter Elsa has a learning disability, and Liz's brother Kenny also has a learning disability.

Liz lives in Yorkshire and Humber, and is part of the National Valuing Families Forum planning group.

Rhianon Gale

Rhianon Gale

Ally

Rhianon was formerly the manager of Hft's Family Carer Support Service. She now works with families as an independent consultant.

She is also part of the National Valuing Families Forum planning group.

Pamela Gallagher

Pamela Gallagher

Ally - Hft's Family Carer Support Service

Pam works with Rhianon in Hft's Family Carer Support Service.

Dan Scorer

Dan Scorer

Ally - Mencap

Dan is Head of policy and public affairs at Mencap.

His son has a learning disability.

Bella Travis

Bella Travis

Ally - Mencap

Bella is part of Mencap's campaigns team and has done lots of work around people with profound and multiple learning disabilities.

Robina Mallett

Robina Mallett

Ally - Mortality Review

Robin originally came to the National Valuing Families Forum representing Hft's Family Carer Support Service, but also as a member of the Standing Commission for Carers.

Two of Robina’s three daughters have learning disabilities. Since they were tiny she has joined with others to help make sure people with learning disabilities and their families get the rights, information and support they need to have full, healthy lives.

Robin has stepped down from both her Hft and Standing Commission roles but is a prominent member of the advisory group supporting the Mortality Review.

Susan Garrett

Susan Garrett

Ally - North East Family Forum, Durham Carers Centre

Susan is the Senior Development and Service Support Officer at Durham Carers Centre.

She is a member of the North East Family Carer Forum, and has supported the regional reps at the National Valuing Families Forum.

Chris Scholl

Chris Scholl

West Midlands Regional Co-ordinator

Chris co-ordinates the West Midlands regional family forum, and supports Shirley Corbett the regional representative.

Chris was the regional lead for the Valuing People team.

E:
chrisscholl@yahoo.co.uk
Helen Daly

Helen Daly

Eastern Region Co-ordinator - Inclusion East

Helen co-ordinates the Eastern regional family carer forum.

Helen is a co-Director of the community interest company Inclusion East.

Inclusion East CIC was formed in January 2011 by a group of families in the East of England who share common values and views about the quality of life and the kinds of support that should be available for people with learning disabilities and their families.

Helen is a mum to Liam who has profound and multiple learning disabilities.

Jo Hough

Jo Hough

Ally - Inclusion East

Jo is a co-director of Inclusion East.

Inclusion East CIC was formed in January 2011 by a group of families in the East of England who share common values and views about the quality of life and the kinds of support that should be available for people with learning disabilities and their families.

First and foremost Jo is mum to her two sons. She also work in a variety of self-employed roles as a trainer, organiser, co-ordinator, administrator, and facilitator.

She is a graduate of the Partners in Policymaking 2005 Eastern Region leadership development programme, which gave her lots of information, skills, and contacts that have helped her to get the support that her family needs.

Christine Towers

Christine Towers

Ally

Christine worked for many years at the Foundation for People with Learning Disabilities and has been a friend and ally to the forum.

She has been a passionate supporter of the work around carers with learning disabilities and currently supports Pat, the carers with a learning disability representative, at the forum.

She has also done lots of work around planning for the future and is the writer of Thinking Ahead to plan the future & Talking Together on growing older

Lynn James Jenkinson

Lynn James Jenkinson

North West Regional Co-ordinator

Lynn co-ordinates the North West Regional Family Forum and supports the regional representative Julia Erksine.

Lynn is Director of North West Training and Development Team and Chief Executive of Pathways Community Interest Company which includes supporting the development of our programmes supporting children, adults, families, research and services

E:
lynn.james-jenkinson@pathwaysassociates.co.uk
M:
07970 900 226